Strategic philanthropy through the Cambia Health Foundation is an expression of Cambia Health Solutions’ cause to serve as a catalyst to transform health care. The word catalyst is intentional, and it is important. At the Foundation, we do more than write checks. We actively partner with our grantees to bring about transformational change that helps people and families. In this quarter’s newsletter I’m pleased to acknowledge some of the key partners with whom we are working to advance palliative care.
At the CAPC Annual Seminar in October, both Dr. Diane Meier and Cambia’s CEO Mark Ganz spoke about our $258,000 grant to CAPC to conduct a nationwide assessment on home-based palliative care. We’re looking forward to learning from the research results, which we believe will highlight opportunities for action and change!
While Mark and Diane were speaking at CAPC in Orlando, the Foundation team was honored to host the national Grantmakers In Aging Conference right here in Portland, Oregon. We were so pleased to welcome Board Chair Ann Monroe, CEO John Feather, the entire GIA team and more than 200 conference attendees to our beautiful backyard to focus on improving the lives of older adults and people of all ages. More than 200 top local and national funders gathered for three days of networking, and the timing was ideal: 2016 happened to be Portland’s 10th
anniversary of participation in the World Health Organization’s Global Age-friendly Cities project. I want to thank Bridge Meadows and Cedar Sinai’s Weinberg Clinic for hosting site visits, exemplifying how innovation and quality can go hand-in-hand to provide age-friendly housing models. I also want to thank Betty Ferrell, PhD, RN, who, as one of our keynote speakers, shared her research, knowledge and expertise about the issues facing family caregivers. I am always inspired to do more after listening to Betty speak.
In early November, all of us at Cambia Health Foundation were excited to welcome grantees from all three cohorts of our Sojourns Scholar Leadership Program to Portland for an annual summit. The Sojourns Scholar Leadership Program is an initiative that identifies, cultivates and advances the next generation of palliative care leaders. The program supports outstanding nurse and physician emerging leaders by investing in their professional development. Sojourns Scholars receive $180,000 in funding over two years to conduct an innovative, impactful research project in the field of palliative care and build a leadership development plan designed to support growth as a leader in the field. It was invigorating to spend time with this impressive group of nurses, physicians and mentors. While their work is already impacting the field, I am excited to witness the future impact of their innovation and leadership on the quality of life for seriously ill individuals and their families.
On November 7, we were pleased to partner with The Universityof Washington's Cambia Palliative Care Center of Excellence and the Hutchinson Institute for Cancer Outcomes Research to convene the second annual regional summit on palliative care quality measurement. The summit took place at Cambia Grove in Seattle. We appreciated the robust dialogue on the importance of using metrics and engagement to improve palliative care, and we look forward to continued conversations and refinements that result in standardized outcome measures that set guidelines for quality, goal-concordant palliative care.
I invite you to watch for our next newsletter in early 2017, which will recap the work of Cambia Health Foundation and our grantees throughout 2016 to advance children’s mental and behavioral health; improve palliative care access, quality and understanding; and transform the entire health care experience for people and their families. Thank you for your interest in our work. Happy Holidays to you and yours!
President and Board Chair, Cambia Health Foundation
In November and December, the Cambia Health Foundation Board approved new investments totaling $1,113,000:
- $350,000 to support our signature Sojourns program to advance palliative care quality, access and understanding
- $476,000 to support health care transformation for those in need
- $287,000 to support child behavioral health initiatives and programs
Fully Transparent Medical Records: The Open Notes Movement
Toward the goal of creating simple and personalized health experiences for people, Cambia Health Foundation, Gordon and Betty Moore Foundation, Peterson Center on Healthcare, and the Robert Wood Johnson Foundation jointly are funding the national OpenNotes movement with $10 million over the next three years.
OpenNotes is a simple idea with significant impact: doctors invite patients to review the notes made following an office visit, to provide fully transparent medical records and enhance communication and engagement among patients, their families, and those who care for them.
OpenNotes is a movement to change practice and culture, not a software package. Facilitated by new capacities in digital and electronic health tools, such as personalized apps and patient portals, OpenNotes will empower 50 million patients to access their medical notes by 2020.
More than 11 million patients nationwide already have easy access to their clinicians’ notes, and led by Oregon and Washington, the Pacific Northwest is a national leader. In Washington, a team based at Harborview Medical Center is forging partnerships and using participatory research methods to answer some key questions about the value of OpenNotes to the entire health care system.
Presentations & dissemination
Current Studies by Dr. Elmore’s University of Washington Team
- On October 3, 2016, Joann Elmore, MD, Professor of Medicine at University of Washington, Director of Research and Measurement for the OpenNotes collaborative, was the lead speaker for the Health Innovation Forum, hosted by the Cambia Grove in Seattle. Dr. Elmore provided an overview of OpenNotes and led a panel discussion with Tom Payne, Homer Chin, Amy Fellows and John Santa, focused on patient engagement and OpenNotes.
- OpenNotes patient advocate Linda Johnson was featured in an HIT Leaders & News article, in which she described the benefit in being able to access her complete medical record during a medical crisis while visiting her daughter in Baltimore, 3,000 miles from her Seattle home and doctors. Linda shared access to her online medical records with her daughter, who could completely and correctly communicate Linda’s health history to doctors in Baltimore. Linda shares her story in this OpenNotes educational video. She and her physician from Harborview Medical Center, Dr. Sara Jackson, will speak about Linda’s experiences with Open Notes at a workshop for the American College of Physicians' Annual Meeting in San Diego in April 2017.
- Hospital Discharge Evaluation Study: A project on patients hospitalized at Harborview Medical Center which evaluates whether: 1.) in-person training for the patient portal and emailed follow-up reminders are a feasible and acceptable intervention to increase patient access, and 2.) patient access to inpatient discharge summaries effect patients’ understanding of their health, medications and engagement in care. The study recruitment ended on October 30, 2016 and enrolled 107 participants, and is now in the analysis phase, with plans to submit the results to a peer-reviewed medical journal next year.
- Adult Medicine Clinic Focus Groups: Focus groups were conducted with diabetic patients at the Adult Medicine Clinic to seek their perceptions on the formatting and content of OpenNotes. Patients were so excited about meeting other diabetic patients and the OpenNotes concept, they want to meet again in the future. These patients felt that they are ideally suited to educate their peers about OpenNotes expansion among vulnerable patients.
- Perceptions about OpenNotes among diabetes patients: As diabetics have a chronic illness that requires an added level of patient engagement, it was hypothesized that diabetic patients might perceive even more benefit of open notes than non-diabetic patients. Groundwork is underway for a new study. It will use baseline and post-intervention survey data from our initial OpenNotes intervention in 2010, and evaluate perceptions of OpenNotes from approximately 5,000 patients who were identified with a diagnosis of diabetes using ICD-9 codes.
- Perceptions about OpenNotes among patients receiving mental health care: One roadblock has been identified: a fear among hospital leaders and physicians that patients with mental health diagnoses will not benefit from open notes and that these patients should not be given access. A study is being designed to evaluate perceptions about OpenNotes among patients receiving mental health care (based on ICD-9 codes). The study will use data from approximately 7,000 patients who completed the baseline OpenNotes survey.
This important work has positioned the OpenNotes movement to make even larger gains in 2017. You can find research studies, toolkits and informational videos at http://www.opennotes.org/
and follow progress of the OpenNotes movement on Twitter @myopennotes.
More than 200 top local and national funders gathered in Portland in late October at the 2016 Grantmakers In Aging Conference
, “Climbing Higher: Working Together to Reach New Heights in Aging Philanthropy.” Presenters included Marcus Escobedo, The John A. Hartford Foundation
; Elyse Salend, Cambia Health Foundation; and Steven Birenbaum, California Health Care Foundation
Cambia Health Foundation is investing $60,000 over one year to Friends of the Children—Portland
, to provide behavioral health counseling to program youth and comprehensive trauma-informed training for staff. This continues work already underway through strategic investments to the Children’s Center in Vancouver, Washington to provide on-site mental health services at three schools serving youth from grades K-12; and to Oregon’s Tigard-Tualatin School District, to support ongoing mental health coordination efforts for 16 Portland-area schools serving more than 12,000 students K-12.
Cambia Palliative Care Center of Excellence-UW, the University of Washington, HICOR and Cambia Health Foundation hosted the Palliative Care Metrics Summit 2016 at Cambia Grove
in Seattle November 7. CPCCE’s Director Dr. Randy Curtis is shown talking about Quality Metrics.
Congratulations to four participants of our Sojourns Scholar Leadership Program
: Dulce Cruz Oliver, MD and Thomas Leblanc, MD (both members of the 2015 cohort), who recently earned the designation Fellow of the American Academy of Hospice and Palliative Medicine; Seiko Izumi, PhD, RN (2015), designated a Fellow in Palliative Care Nursing; and Arif Kamal, MD (2014), who will receive the Early Career Investigator Award for medical research. All will be recognized at the Annual Assembly/Hospice and Palliative Care in February.
Based in Portland, Oregon, Cambia Health Foundation is the corporate foundation of Cambia Health Solutions, a total health solutions company dedicated to transforming the way people experience health care. Cambia Health Foundation is a 501(c)(3) grant-making organization that strategically invests and partners with organizations regionally and nationally to advance palliative care quality, access and understanding; improve the mental and behavioral health of underserved children; and transform health care to a more person-focused, equitable and economically sustainable system. Learn more at www.cambiahealthfoundation.org
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