Pediatric Palliative Care Conversation Toolkit for the Chronic Critically Ill (CCI
The objective of this mixed methods project is to develop and evaluate a toolkit that provides a structure for palliative care conversations for the families of CCI children in the ICU settings, with the exploratory objective to evaluate the effectiveness of integrating an academic nurse scientist into a clinical palliative care team. The central hypothesis is that the Chronic Critically Ill Palliative Care Conversation modular toolkit will improve family perception of quality of communication and their capacity to provide care to their child. The patient population for this study will be the families and children suffering from CCI in the intensive care setting. Once the modules have been designed, implemented, and evaluated locally, they will be made available via open-access nationally to help improve care for this population.