Bethany-Rose (BR) Daubman
Massachusetts General Hospital
Developing a Palliative Care Educational Program for Community Health Workers on American Indian Tribal Lands in South Dakota
My goal is to develop, study, and disseminate a palliative care educational program for community health workers (CHWs) on Lakota American Indian tribal lands in South Dakota that is congruent with Lakota tribal values and priorities. We will first explore tribal understanding of and receptivity to palliative care, determine how CHWs are currently being utilized on the reservations, and form relationships with tribal elders and traditional healers. I will build upon my regional and global educational work to develop a culturally congruent palliative care CHW curriculum. The curriculum will be evaluated through CHW satisfaction and knowledge self-assessment measures. We will then engage in a palliative care CHW feasibility/acceptability pilot with seriously ill Lakota patients on tribal lands. All phases of the program will be developed in conjunction with a community advisory board of enrolled tribal members and with the support of the Northern Plains American Indian Palliative Care Collaborative. I will also engage with external palliative care programs on other American Indian tribal lands to ensure the development of a culturally-congruent and adaptable palliative care CHW curriculum relevant for the 300+ American Indian reservations around the US, extending the reach of palliative care to this dramatically underserved population.