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2018 FALL NEWSLETTER

A message from Peggy Maguire, President and Board Chair of the Cambia Health Foundation


The first half of 2018 has been a very busy and rewarding time for Cambia Health Foundation.  In this edition of the Foundation newsletter, I am delighted to share some recent strategic investments and highlight the impact our grantees are having on the health, well-being and quality of life for people and families across every stage of life.

Palliative Care
The Foundation purposefully partners with palliative care organizations and professionals to transform the experience of people living with serious illness and support their family caregivers.  Learn more in this issue about our partnerships and investments to help people live as well as possible for as long as possible through access to quality palliative care.

Healthy People, Healthy Communities
Through our investments in Healthy People, Healthy Communities, we advance patient and consumer-centered care that improves individual and population health by integrating prevention-focused physical, behavioral and oral health care services into a seamless experience that reduces costs and improves quality. Read in this issue about our continued engagement with Oregon Healthiest State and our strategic partnership with OpenNotes, a national movement creating fundamental change in the way patients and consumers receive information about their interactions with the health care system.

Building Resilience in Children
We also invest in work that builds resilience in children and mitigates the impacts of exposure to toxic stress and trauma. In this issue, we'll share how we actively support programs such Friends of the Children and National Children’s Alliance (NCA) to help children and families tip the scales toward more positive health behaviors and outcomes.
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As we look to the latter half of 2018, I am excited about what’s to come and look forward to sharing more stories and announcements that reflect the Foundation’s vision and commitment to transforming health care for people and families. 

With hope and optimism,

 - Peggy 


 

Oregon Healthiest State
We continue to support community-led health transformation efforts like Oregon Healthiest State. Watch Transforming the Health of Oregon Communities, a video that shows how this expansive project has developed solutions that are both led by community members and built on the learnings of those who have come before them.

End Well
Cambia Health Foundation is the presenting partner of 2018 End Well Symposium to be held on December 6, 2018, in San Francisco, CA. We are excited to participate in this unique conference that brings together diverse innovators in the design, technology, policy, health care and activist communities to generate human-centered solutions that will transform serious illness care and culture. For more information on speakers and program or to register for this fast-paced day of learning and connection, visit www.endwellproject.org

End Game
We are supporting a series of community screenings and panel conversations around the Netflix documentary: End Game, which follows the stories of people and families living with serious illness and receiving care at University of California San Francisco (UCSF) and Zen Hospice.

         
  • Seattle, WA panel participants; Peggy Maguire, Dr. Steven Z. Pantilat, Director, Palliative Care Program at UCSF and Dr. Randy Curtis, Director, Cambia Palliative Care Center of Excellence at University of Washington Medicine


Huntsman At Home
To ensure that patients and families receive the care they need in their desired setting (including the home if that is their preference), the Foundation has awarded the Huntsman Cancer Foundation, in Salt Lake City, Utah, $277,233 to develop and execute a 3-year evaluation of a new home-based cancer supportive care and palliative care delivery model called Huntsman at Home.  The evaluation will track key process and outcome metrics from the demonstration project, provide important lessons for the field around patient centered care and make recommendations for sustainability.

City of Hope
In alignment with the Foundation’s goals of developing the workforce and improving access to palliative care in community, rural and underserved areas, the Foundation invested $856,373 in the City of Hope to support expansion of its End-of-Life Nursing Education Consortium (ELNEC) curriculum to undergraduate students and graduate nursing students.  The expansion will target new schools in rural and palliative care resource-poor areas providing students with knowledge and skills to positively impact the lives of patients and families facing serious illness.

Hospice and Palliative Nurses Foundation
As part of the Foundation’s commitment to workforce development, the Hospice and Palliative Nurses Foundation will receive $265,375 to develop and implement an intensive 18-month HPNA Nurse Leadership Development Program.  It is envisioned that empowering nurses across all settings through participation in this program will serve as a future resource for nurses to advance their leadership in hospice and palliative care and transform care delivery


Center to Advance Palliative Care (CAPC)
The Center to Advance Palliative Care (CAPC) recently published findings from an evaluation of home-based palliative care (HBPC) programs.  The study, funded by Cambia Health Foundation, provides a better understanding of the challenges organizations are facing when planning or running an HBPC program, and identifies solutions that would allow for the growth of high-quality home-base palliative care.  Check out A Road Map for Home-based Palliative Care Programs: Anticipating Program Challenges and Identifying Solutions, which summarizes the findings and offers suggestions on how best to move forward.

OpenNotes
OpenNotes is a national movement creating fundamental change in the way patients and consumers receive information about their interactions with the healthcare system.  Research shows that providing easy access to physicians’ notes empowers patients, families, and caregivers to feel more in control of their health care decisions and improve the quality and safety of care.  In June 2018, the movement celebrated reaching over 25 million patients and consumers having full access to their visit notes toward their nationwide goal of 50 million by the end of 2020.  At the same time, OpenNotes is becoming a leader in supporting shared decision-making and consumer-driven care.  Learn how our strategic partner is making healthcare more consumer friendly for everyone and how you can discuss Open Notes with your provider.

Friends of the Children
To shine a light on a revolutionary mentoring model that builds resilience in children, the Foundation provided sole funding towards the creation of a documentary about Friends of the Children (FOTC) as part of the award-winning PBS documentary series, Visionaries. Click Visionaries Presents "Friends of the Children," to view a digital download of the film which features the organization’s innovative social change model pairing children facing the highest risks with a salaried, professional mentor, called a Friend, from kindergarten through high school graduation.

National Children’s Alliance (NCA)
Read Helping Clinicians Heal the Future to learn how Cambia Health Foundation's investment in the National Children’s Alliance and the Yale Child Study Center led to the implementation of an evidence-based, acute treatment model for clinicians at Children’s Advocacy Centers (CACs) in Idaho and Utah.  The project: Implementing the Child and Family Traumatic Stress Intervention focuses on increasing caregiver support of the child/adolescent through enhanced communications and helps children better heal from the symptoms of trauma that might otherwise affect them for the rest of their lives.




American Hospital Associations (AHA) Circle of Life Awards
For the past five years, Cambia Health Foundation has co-sponsored the American Hospital Association (AHA) Circle of Life Awards to shine a light on innovative and inspirational palliative care delivery programs that serve as models for other provider organizations.  We're honored to celebrate with this year’s recipient organizations; Hospice of the Valley, Penn Medicine, and Caring Way. Congratulations to all the recipients and honorees.


Improving Communication with Families in Pediatric Palliative Care - Dr. Jennifer Walter, Sojourns Scholar
To improve the decision-making process for families facing serious illness, it is important to have a coordinated response across the multidisciplinary team.  Learn how Dr. Jennifer Walter of Children’s Hospital Philadelphia developed and implemented a clear set of guidelines for how interprofessional teams should work together to prepare for and conduct family meetings to best support families of children with complex congenital heart disease.

Developing Care Goals for Infants in the ICU - Dr. Renee Boss, Sojourns Scholar
It is often challenging to initiate and maintain a positive flow of communication with parents, as an infants’ medical conditions become more complex and their prognosis uncertain. Read about the tools put into place by Dr. Renee Boss of John Hopkins School of Medicine to foster more meaningful discussions and prepare families for difficult conversations.

 

Conversations about Surgery and Palliative Care with Adults - Dr. Toby Campbell, Sojourns Scholar
To help patients and families make more informed decisions when considering high-risk surgeries, Dr. Toby Campbell of University of Wisconsin School of Medicine formed a new communications model that reflects the physical, emotional and spiritual needs of an individual. Check out Best Case/Worst Case Communication Tool, a whiteboard video with examples of specific scenarios that demonstrate Dr. Campbell's innovative approach.
 



Based in Portland, Oregon, Cambia Health Foundation is the corporate foundation of Cambia Health Solutions, a total health solutions company dedicated to transforming the way people experience health care. Founded in 2007, the foundation has funded over $58 million in grants to advance patient- and family-centered care for all. Cambia Health Foundation strategically invests in philanthropy to change the way people experience health care from birth to natural completion of life.  Learn more at www.cambiahealthfoundation.org or follow us on Twitter.