Rachelle Bernacki

Rachelle Bernacki

Discipline: Physician
Funding awarded to: Dana Farber Cancer Institute/Ariadne Labs, Cambridge, Massachusetts

Serious Illness Care Community of Practice

The Serious Illness Care Community of Practice is a network of interdisciplinary teams working together to improve the lives of the seriously ill by increasing meaningful conversations with clinicians about their patient’s values and priorities. The Community of Practice will leverage the materials and methods developed in the Serious Illness Care Program, which is designed to support clinicians in conducting the right conversation, at the right time (in the outpatient setting, before a crisis), with the right people (patient and family) present or included, guided by the right clinician (the person who knows the patient and his/her medical situation best). Our patient-centered communication intervention creates a population management system to: 1) identify patients who would benefit from discussions of end-of-life preferences; 2) train and coach physicians and other clinicians to use a structured communication guide to elicit patient values and goals; 3) trigger clinicians to conduct conversations 4) facilitate patient communication with family members; and 5) document patients’ wishes in a “single source of truth” in the electronic medical record. Impact will be achieved through development and dissemination of a system that allows preferences for care that are communicated and followed across the care network.

Numerous studies show that patients want to have conversations about end-of-life care and expect their clinicians to initiate these discussions. When these conversations occur, there is greater concordance between patients’ wishes and the care they receive; better patient quality of life; less use of non-beneficial life-sustaining treatment; more use of hospice care, which allows patients to remain at home; reduced family distress; and reduced overall resource use. However, physicians do not feel comfortable having these conversations and, in fact, identify more barriers to having these discussions than do patients. I am committed to increasing meaningful conversations between clinicians and the seriously ill; my goal is to discover innovative methods to bridge the divide between proven research findings and actual care for the seriously ill. The growing field of implementation science promotes the integration of research findings and evidence into healthcare policy and practice, and seeks to understand the behavior of healthcare professionals and other stakeholders as a key variable in the sustainable uptake, adoption, and implementation of evidence-based interventions. The focus of my Cambia Health Foundation Sojourns award will be to increase my skills in implementation science.