Western Carolina University
Best practices to engage rural families and caregivers in the palliative care needs of patients with kidney disease
The overall goal of the project is to identify how to engage the family members of rural kidney patients with respect to palliative care to ensure that patients receive care that is consistent with their own values. This project has three aims and phases: 1. Describe the perceptions, desires and needs of family members of rural kidney patients in the area of palliative care. 2. Assemble a meeting of local stakeholders including rural patients with kidney disease, their families, and providers about the best approach to engaging family members of rural kidney patients in palliative care. 3. Develop a best practice tool for providers of rural patients with kidney disease to engage the families of patients in rural areas regarding palliative care. This project will support and expand my current leadership efforts from rural Western North Carolina to be a voice for rural patients, families and providers on a national level.