Children's Hospital Los Angeles
Maximizing the Use of Home-Based Care for Children with Serious Illness
The primary aim of my project is to maximize access to home-based hospice and palliative care programs for children with serious illness. The project has two goals: 1) To understand key differences among children cared for by the Division of Comfort and Palliative Care at Children’s Hospital Los Angeles (CHLA) according to the type of home-based program the child was referred to, if any. 2) To use quality improvement (QI) methods to increase the appropriateness and efficiency of the referral process to home-based programs by palliative and non-palliative care providers at CHLA. Activities include a retrospective chart review to compare differences in patient characteristics and health care utilization by referral category. In addition, the project will bring together a quality improvement team who will collaborate to improve the home-based care referral process and develop a clinical decision support tool to be used by both palliative and non-palliative care providers. Lessons learned from this project will be generalizable to other children’s hospitals in California and beyond. This project could also inform future population-based research efforts to better understand which children can benefit most from the home-based hospice and palliative care programs.